Showing posts with label OCPD. Show all posts
Showing posts with label OCPD. Show all posts

Sunday, May 28, 2023

Behind The Eight Ball

It started back in August,

The transition from delivery driving to tutoring,

Too many emails back and forth,

Not enough time to make deliveries,

Three-week delay until my first tutoring paycheck.

I’m behind the eight ball

 

End of September,

Busy with tutoring,

Lots of balls moving around,

So stressed trying to keep things straight,

That I made a mistake.

I’m still behind the eight ball

 

Winter break,

No kids to tutor,

People are cooking instead of ordering,

No quarantines,

Less deliveries,

The balls stop moving.

I’m stuck behind the eight ball

 

Second semester,

The schedule is nearly full,

But I’m playing catch up,

I love this job, and I am good at it,

I just don’t have enough students,

To stay afloat,

The balls are moving, but not a single tap.

I’m stuck behind the eight ball

 

Spring Break,

Another slow week,

Trying to brainstorm another plan,

To replace delivery driving,

Every option is beyond my abilities,

The stress and anxiety builds,

Whoops, another mistake,

A ball rolls by without a touch.

I’m stuck behind the eight ball

 

The year is almost over,

An unexpected problem,

I’m not prepared for this,

My head is swirling in worry,

About what else could happen,

The balls have disappeared.

I’m stuck behind the eight ball

 

Looking at summer,

My mental health is a mess,

I’ve fallen behind on everything,

I need to take time to heal, to prepare for fall,

When the need for tutors will grow,

But first I have to find the other balls.

Because I’m still stuck behind the eight ball

 

And I can’t seem to break free.

Saturday, January 1, 2022

The Three D’s

Remember two years ago, when I said the 20s were going to roar? 

Well, I didn’t mean a little virus was going to roar over us.  It’s been…quite a year.  No, quite a couple of years.

I love to spend New Years’ Day reflecting on the past year—and planning the next.  As I said in Bill’s This Time Next Year challenge, the lockdowns and furloughs and protocols have worn me down, and now, I am in the worst shape of my life, physically and mentally, since college.  Everything has fallen apart, and I feel completely broken.  And I am far from alone.

Despite all of the awful, I learned some very valuable lessons in 2021.  In February, I was diagnosed with Obsessive Compulsive Personality Disorder, finally understanding how my brain works.  I realized that all the time I have spent escaping into a dreamland was exactly what prevented me from chasing my dreams.  I wasn’t only using my dreams as an escape—I was using “self care” as an excuse to avoid the long, difficult pathway towards success. 

In these two years of ‘rona, I had forgotten what it was going to take….to live the life of my dreams.

Clearly, I need a reboot, and it starts with developing three qualities that all start with the letter D:

Determination.  Dedication.  Discipline.

Last year, I talked about the Grind, how to keep going when you’re tired or challenged or never believe you will succeed.  I had three goals, and while #blogsandcoffee has been a great success, I struggled to create a daily routine.  (Don’t even ask about the English accent.  I decided to start learning French instead.) 

The reason I failed at creating a daily routine—was that I wasn’t determined enough to be dedicated enough to have the discipline to make it happen.  I chose the instant gratification of dreams and indulgences, rather than working through the challenges from juggling so many balls in the air.

Did you know that people with OCPD struggle with multitasking?  Um, yeah.  I probably also need to learn how to say “no” more often….

Now, there are a lot of people reading this and thinking, “um, Erin, you are the most disciplined, dedicated person I know.  I mean, in high school/college/work/running you are so able to get it done.”

Well, I am…when it’s simple, like training for a marathon, or has triggered my compulsions, like writing this blog post, but once things get complicated, I can’t handle all that’s being thrown at me.  Like what we have to manage as an adult—work, home, finances, health, leisure—add in the stresses of covid, and I have lost my way. 

(I’m also really, really good at hiding my struggles.)

To succeed at this endeavor, I have to start simple, with one project I know I can do if I am determined, I am dedicated, and I am disciplined.  I need to appreciate the baby steps it will take to complete this project and do them, even when I’m tired or anxious or had a bad day.  It will be like filling a rain barrel with an eyedropper, so I have to use these three D’s to stay on track, progressing towards completion.

Once I have reached my goal with that first project, I repeat the process with another project, then another, and another, building my determination, my dedication, and my discipline with each iteration, empowering me to tackle increasingly difficult projects.

If I master these three D’s, perhaps I will have a daily routine by the end of the year, the first step towards the life of my dreams.

Sunday, August 8, 2021

About Simone Biles and Mental Health

Finally, it’s the Olympic Games!  I remember getting so excited for the 1984 Olympics in Los Angeles, watching the Opening Ceremonies while checking off the delegations on my world atlas.

That was five months after my mother sat us down to watch Torvill and Dean in Sarajevo, the only perfect Olympic ice dance performance in history.  Little did I know then that I would become an ice dancer myself, decades later.

It's not the Olympics, but definitely nerve-wracking!

We were glued to the television set those 16 days in the summer of 1984.  From Mary Lou Retton to Carl Lewis to the first women’s marathon, I loved all the Olympic sports we didn’t normally see on television, and like most kids, dreamed of being an Olympian.  Of course, it was pretty clear that I just didn’t have the athletic talent to get there, nor the dedication to do the same thing over and over and over again for years to achieve that dream.

Still, watching the Olympics became a regular tradition, and now having participated in both a Winter (figure skating) and Summer (marathon running) sport, it’s very special to feel a connection to the stories playing out on television.  I know what it’s like to face a panel of skating judges or trying to manage a hot, sunny race day.

This is what I will tell you, after two decades of athletic training:  it is HARD to be an Olympian.  You train day in and day out in relative obscurity to perform your best at one competition that only occurs once every four years. 

Or, if the world shuts down due to a global pandemic, five years.  2020 was a terrible year to be an elite athlete.  Facilities closed and locked down.  Competitions cancelled.  And when they announced that the Olympics would be postponed, many couldn’t turn to the one thing they’ve done for decades to soothe their mind—practicing their sport. 

It’s been a very long fifth year for these athletes, and watching these Games, it’s very clear it is a very different Olympics.  Parents are watching from home.  Audiences are made up of media and fellow athletes—at least, those who are still competing as they are sent home as soon as their events are finished.  For the athletes, who are used to competitions being a certain way, it must be discordant, disruptive, and distracting to not have a full arena of cheering crowds—or more importantly, a hug from Mom and Dad before their event.

Like so many others, I was shocked that Simone Biles withdrew from the ladies’ team final due to a mental health issue, but once I saw her vault, it completely made sense.  Even though she had made little mistakes at both the trials and at qualifying, that vault was just….wrong.  It was very clear her mind was in a very bad place, to the point of danger.  Thankfully, she was able to land on her feet instead of her head, go backstage to talk with the team doctor, and make a decision that kept her safe.

….and social media exploded.  Armchair experts, criticizing her decision, telling her that the Olympics are about “pushing through” challenges.  People who can’t do a cartwheel or somersault, never mind a double twisting double pike, thinking they know what’s best for an athlete who has spent the past five years mastering her sport for this very moment while juggling the responsibilities and expectations of federations and sponsors. 

It was too much, and her mind….broke, separating from her body to the point that she could no longer physically do her sport.  Had she broken her ankle or—gasp—been taken off the floor on a stretcher on her way to the ER, there would be outpourings of sympathy, but since she is physically fine, it didn’t make sense to people who honestly, don’t understand how mental health really works.

Well, it made perfect sense to me.  It seems so long ago when I was running negative splits through Central Park in the New York City Marathon.  Taking a break to heal after the marathon turned to hustling multiple jobs to keep my head above water to surviving a global pandemic.  Just like many who struggle with mental illnesses, the stress over furloughs and disease and isolation and “not normal” triggered my OCDP contamination fears to spiral out of control, to the point where making a plan to run with friends is dictated by the various anxieties and rules created by my illness. 

Physically, I’m fine, but it has become so much a fight in my head to go running that I can’t.  It’s not something I can think away or push through or get over myself, because that will trigger a full-blown, self-destructive panic attack.  Like Biles, I have to find a way back to the basics, back to figuring out a way out of this hole, because I still have three marathons to run, including Boston.

Cashed in some gift cards for a new toy...just working on that insane step goal right now.

However, it’s not just about sports.  I struggle getting out the door of the house on time because I just can’t get my hands correctly clean.  People suffering from depression literally cannot get out of bed in the morning, while anxiety sufferers can get trapped in their own worried thoughts.  So many people having to fight their heads, their thoughts, every day—just to be a functional, productive member of society.

We have all faced mental blocks.  Maybe it’s a task that you just can’t start—or can’t finish.  Maybe it’s overcoming a fear or anxiety.  Maybe it’s having a confrontation or difficult conversation.  We have the training, the skill set, the ability to do it, but our minds just scream, “no!”  When your mind is blocking you, even from doing something you love, there is no escape. 

And when that block is about twisting and flipping and trying to land on your feet, you have to withdraw from the Olympic Games.  Even though these athletes make it look so easy, it’s not. 

After watching Mary Lou Retton win the all-around gold medal in 1984, I asked for—and received—gymnastics lessons.  I realized very quickly that not only did I not have the strength to do the basics we were learning in our group lessons, but that I was scared to do simple skills like handstand roll downs and back walkovers.  Gymnastics is a dangerous sport, and after my first meet, I decided it wasn’t my thing, moving on to the much safer ballet and tap dancing.

(I never did ask for figure skating lessons because I knew they happened before school, and my mother struggled to get us to school on time as it was.  Ah, hindsight.)

It’s not a surprise that so many Olympians and professional athletes have supported Biles in her decision to withdraw from the Olympics.  Every top athlete lives with the pressure from the obligations they have to their sport, their federation, and their sponsors, never mind what they place on themselves to keep winning, to keep succeeding.  At that level, it’s not enough to be at their top physical condition.  They have to be mentally strong to overcome all the nerves that come with being on their sport’s greatest stage, and over the years, we’ve seen many talented athletes come up short as their minds struggle with the stress, stress that many sitting on their couches at home take for granted because it’s so invisible.  Until Simone Biles said, “I can’t.”

Simone Biles might come away from Toyko without a gold medal, but she has given us all a lesson in mental health. 

Saturday, May 1, 2021

Words Hurt as Much as Hands

 

“We should have never let you go to Lawrence.  You weren’t ready for college.”

I stopped, stunned.  “What did you say, Mom?”

“We watched the video from Colorado.  You were clearly miserable and not ready to go off to college. You should have stayed home and gone to MCC.”

Ah, Colorado.  The family vacation we took the summer after I graduated high school.  Since my school started much later than everyone else, my parents planned the trip in August….when all my friends were leaving for school.  Cue moody, miserable teenager.

This conversation, though, was many years later, when I was in my early 30s, and my parents were going through old photos and videos, one piece of the eventual sale of my childhood home.  It hurt to hear her discount all the hard work, all the scrimping and saving, all the effort we had taken as a family for me to get into—and afford—a rigorous, top-tier school.    

Today is May 1st, decision day, and that memory always creeps in my brain as I think about my students and their college choices.  Spring has bloomed with college decisions and Mother’s Day….and blue children all over Lake County to raise awareness of child abuse. 

 

A Blue Kid of Lake County to promote Child Abuse Awareness

It all reminds me of my rocky, difficult relationship with my mother.

“Look at those girls,” my mom is saying to junior high me.  “Do you see them laughing at you?”

“No, where?”  I glanced around and saw two girls I didn’t recognize, whispering and giggling.

Maybe they were laughing at me, but they didn’t cast an impression on me.  I was a bit of a contrarian as a junior high kid, the type of kid who had a clear sense of who she was and where she was going.  I had zero interest in hair and makeup and clothes and celebrities, but loved science and math and Anne MacCaffrey and old movies and The Weather Channel.  I was looking forward to leaving the insular, small universe of my elementary/junior high (yes, one building for K-8) for the larger suburban high school, where there was a chance there were more kids like me, or even that buzzer thing they did on Head of the Class.  (There was.  We won conference my senior year, and I was named to the all-conference team.  I hope that plaque is still hanging in the hallway.)

My mother, however, noticed every single glance, every single giggle, every single whisper, and made sure that I was given the feedback.

The actual teasing and whispers and drama and gossip wasn’t so bad; we were all uncomfortable and struggling.  It was having to come home and have to rehash it in detail that had me terrified every day.  Most of my memories of eighth grade were standing at the foot of my parents’ bed, going through my day with my mom, who was analyzing everything I did and said, trying to suggest how I could have handled it better.  Hours spent staring at the bed, the wallpaper, trying to figure out how to make the conversation stop.

But the conversation never really stopped.  Her voice whispers through me at every social gathering, noticing every look or stare or awkward moment, her post-mortems in my head on the way home.  I look in the mirror, tired, never able to escape the lecture. 

As children, we believe our parents are right.  They are acting in our best interests, and their unconditional love means they would never do harm.  They love us so much they would kill for us, right?  Just like we see in those PBS documentaries.

“Trying to get your ideas on paper is like pulling teeth.  What are you trying to say here?”  A mother in graduate school, helping her daughter get through World Literature in high school.  I swear, those Greek and Latin vocabulary lessons saved me so many times...

“What I wrote down.”

“Erin, it doesn’t make any sense.  Here, you should rewrite it this way.”

Despite working on her masters’ degree in social work, my mother was always willing to help me.  While science and math came easily to me, writing did not.  I loved to read, but I saw a very different world in the literature we were reading—and my need to put the words perfectly on paper impeded my ability to communicate those thoughts.

As we’ve learned this year, parents aren’t always the best person to teach their children, and this was a textbook example.  She didn’t have the training to help me in a way that would encourage me, and as someone where every other aspect of school came easily, the discouragement factor was high.  Every session eroded my confidence in my writing skills, to the point where I didn’t think I could complete an assignment without her help.

It took four tough, grueling, frustrating years at Lawrence before I believed I was an adequate writer.  Four years of writing and editing and essay tests and term papers.  I had chosen a school that required formal, written lab reports and math assignments.

Four years of doing The Grind.

While college isn’t this happy, idyllic memory, I am so grateful for the growth and strength it gave me.  A lot of who I am today came from those difficult times.  Perhaps that’s why my mother’s comments about those four years—and wishing she had kept me home—stung so much, even ten years after graduation. 

*****

“We’d go to teacher conferences, and they kept asking me, ‘why is she so afraid of you?’ I didn’t know what to say, because that’s not how you behave at home.”

Her tone was part frustration, part exasperation, and part accusatory.  My father was on the school board, while my mother was active in the PTA.  In a small school where many of my teachers were also parents, they knew my family, my home, and there were no red flags of abuse.  It didn’t make sense.

To her.  Here I was, in my thirties, and it was the first inkling that maybe her way of parenting wasn’t healthy or right for me.  When I started therapy and unpacking my childhood, I learned that her behavior had crossed the line towards abuse.

What we truly don’t understand until we become adults is that our parents are the products of their own childhoods, their own brokenness from their own parents.  Many abusers were actually victims of abuse, never having dealt with their own trauma, and children are very good at testing their parent’s patience.  Parents who don’t have the practice and skills to handle such difficult situations…make mistakes. 

I will never say that I was an easy child.  The double-whammy of high IQ and undiagnosed mental illness is tough for even the best of parents.  My mother was a fixer, needing to correct everything around her, while I was this mess of a brain that didn’t stop and couldn’t calm.  It was a perfect storm of conflict, the child who didn’t have the language to express the fireworks in her brain and the mother whose brain was so full of her own issues she didn’t have the skills to meet me at my level. 

Instead, she tore me down verbally to gain the upper hand.  As long as she held my self-esteem, I was controllable.  Easy to parent.

We see child abuse as fists and anger, torture and neglect, but we don’t think about the words.  Words of misunderstanding and frustration, words that break confidence and trust.  It’s words that make a daughter who worked on three patents in nanocomposite technology, who got a job with the US House of Representatives, who medaled at a national figure skating championships, who finished nine marathons—believe she is the black sheep of the family, too much a contrarian, a monster, a dictator to be included.

Words matter.  Understanding matters.  Parenting is a hard job, one that, knowing what I know now, is completely beyond my abilities.  Good thing I never did settle down and have children.  The cycle is broken.  Healing is happening, and maybe some day I’ll be able to look at my mother and not feel her disappointment in me.

Not hear her words in my head.

Tuesday, March 9, 2021

Monster

 Something doesn’t feel right.

One little thing,

Shoved dramatically out of place,

One micron.

 

I can’t get it out of my mind,

The imperfection, the missing piece.

The stress builds in me,

As I cannot seem to correct the flaw.

 

My mind starts accelerating,

Faster than a Porsche.

Anxiety to panic,

Anger to rage.

 

I’ve become a demon,

A troll,

A fire breathing dragon,

A combination of all three.

 

The rage blinds my mind.

Maim! Hurt! Kill! Destroy!

The circuits have overloaded,

The fuses, blown.

 

Punishment is metered out,

To excise my internal pain.

For what I did wrong,

To cause the entire mess.

 

Then as fast as a Thanos snap,

The monster vanishes.

My mind is eerily quiet,

And full of dust.

Saturday, February 27, 2021

Time Loop

Scrub, scrub, scrub, 
Never good enough
I’m stuck in a time loop
Of endless handwashing

Touch the faucet 

Scrub, scrub, scrub again


Touch the soap dish

Scrub, scrub, scrub again


Water too hot

Go to the other bathroom 

Scrub, scrub, scrub again


Take three steps from the sink

Have to turn around and 

Scrub, scrub, scrub again


Forget where I was going

What I was doing

Repeat from the beginning

Scrub, scrub, scrub all over


Wash all the dirt off my hands

And my mind

Clear my brain to focus

On the task ahead


I can’t stop until I’m ready

I’m perfect.


Or the idea of having unclean hands 

Slithers around my head

A poisonous snake.


While I’m washing and clearing my mind,

Time ticks on

Aggressively,

Relentlessly.

I have nothing to show for my hard work

But clean hands.

Monday, February 15, 2021

Hamster Wheels and Rabbit Holes

Nine years ago, reeling from having the rug pulled out from under me, I entered a therapist’s office and asked, “what is wrong with me?”

The same question everyone around me has been asking for decades.

After years of sorting through my life, there was a diagnosis:  Obsessive Compulsive Disorder.  The symptoms were there—fear of contamination, handwashing, checking things over and over again—but every time I tried to challenge those compulsions, my head filled not with fear, but rage.

Recently, I discovered the reason why treatment wasn’t working.  I don’t have Obsessive Compulsive Disorder.  I have the rarer and difficult to diagnose Obsessive Compulsive Personality Disorder. 

You know you hit the right disorder…when you read the description and are flooded with memories that completely match the symptoms.  It’s a relief to finally, finally have the right name for all this discomfort.

Then you realize you have a personality disorder.  Like, my personality is so far from normal that it’s “disordered.”  Time to resurrect that exceptional people book club, huh?

A man who turned his ALS diagnosis into great things...so why can't I?

Less than a week earlier, in response to a birthday text where a friend asked me how I was doing, I replied, “stuck on hamster wheels and lost down rabbit holes.”  Ironically, it’s a great description of what living with OCPD is like.

I feel like I’m on a hamster wheel, working so very hard to get things accomplished and checked off the list, but by the end of the day, having little to show for my efforts.  Even in these times, when the minutes drag by like hours, the days like weeks, and the months like years….the to do list seems to be growing instead of shrinking.  (Don’t ask about the bank account.  Spoiler alert:  it’s not growing nearly as fast.)

With OCPD, the organization and procedure for each task is detailed and precise.  Every step in the process has to be carefully thought out and planned.  If my brain even has one molecule of anxiety, I have to walk away and calm myself down.  And if the task isn’t done perfectly, I have to start from the beginning and redo it until it is perfect.

I probably look just like that hamster, expending all that energy with no forward progression. 


Pretty much my entire life....via GIPHY

Probably because I’m constantly getting stuck in rabbit holes I dug for myself.  You know when you put one thing away in the junk drawer, which leads you to organize the junk drawer, where you find that button that popped off a shirt a couple weeks ago, which leads you to find the shirt to sew the button, which leads to doing a load of laundry?  Rabbit hole. 

Well, I tend to dig a lot of them, and then proceed to get lost wandering around the resulting maze of tunnels.  It starts innocently enough with one task, like putting an item away in a drawer, but then I notice that the drawer needs to be cleaned.  As I’m taking out one item from the drawer to clean it, I notice it belongs in another room, but that space needs to be decontaminated before anything can go into there.  I start making a list of how to clean that space, and well, now that first item won’t get put away until I get that list completed.

Of course, life is what gets in the way of plans, and before I can finish that list, I have to sort the mail for an important document or clean out the car or get the laundry room ready for the possibility of something breaking and needing repair….

As I’m trying to fill up one rabbit hole, another dozen or so appear.  

At least, I keep thinking I do...

For years, I believed the issue was that I was lazy or disorganized or, dare I say it, stupid, to figure out how to function like a normal person.  I’ve spent a lot of time trying to fight my brain, which always wins, but now it’s time to figure out a life that works for how I’m wired.

It’s time to step off the hamster wheels and come out of the rabbit holes….and start writing the first chapter of the rest of my life.